Sorry it has been so long since I have blogged! Life has been a bit crazy the past month, and boy, am I "freakin" ready for February to be over!
Since my last post, we have been having some problems with Chris' infusions....the Insurance was questioning if Chris really needed his infusions! Come on! He is suppose to get these infusions every 3 weeks (to live mind you), and it has been since the beginning of January since his last infusion; he is a bit weak and tired, but hanging in there. We went to the Neurologist last week, and the signs of CIDP are still there, and they are concerned that he has not had his infusion...YET! I have literally been on the phone all day fighting with Insurance, nurses, and financial aid. However, I seem to have finally gotten through to someone...and he should be getting his infusion next week (I hope and pray!) It also seems that we may have gotten financial aid for his infusions, thank heavens, these infusions cost up to $7000 a time...and we are responsible for 20% of that a time, can we say house payment?
Riley is doing wonderful, she continues to thrive in school. She is reading at like 2nd Grade level or so, and she is 6! Her vocabulary is getting so big...the other day I was reading a book to her and I said, "this is a strange book," and she said, "I think the book is delightful." What? I am so proud of her. She is doing crazy hard math...tonight we did some simple algebra story problems, yes, I had to read the instructions twice! Last week we had to do a problem such as this: 9 + x = , 10 + x = , and it went on like that for about 7 times; the answer being 12, but they had to figure out what x represents. Crazy. I love it though! She is learning geography and English (pronouns, nouns, etc.) Mrs. Wood her teacher is amazing and keeps them challenged and keeps them kids at the same time. Riley is also in the school play, "Jungle Book," she is an elephant, her and her little friend Sam were riding in my van the other day singing, "The Bare Necessities," too cute. I am excited to watch the show...video and camera in hand! Riley is enjoying gymnastics, and is strengthening her little body for spring sports, soccer and coach pitch baseball. I can't wait to see what kind of a woman this little girl becomes. The sky is the limit with her!
I am busy tending Mrs. Wood's little girl, and have enjoyed spending time with a baby again; I feel it is getting me ready to watch the Foster children that will soon come to our home. I guess, as I write this, I really don't have too much going on....but taking care of Chris, Riley. Boring eh? I love taking care of them though; I still am me though, I take time to educate myself and I read photography books all night (NERD!), but that is my escape. I do love my life, even with the trials, they really do make us who we are don't they?
Chris and I are doing good, we are dedicating ourselves to getting back to the temple, again. We miss it so much. Wish us luck. We will do it.
Well, that is about it, I hope I didn't bore you too much, but I thought I needed to update everyone on what is going on...I know people keep asking. We love you all and thank you that have offered to help and helped us out! You know who you are.
We are so blessed to have so many of you behind us. We hope you are all doing well...we love you!
Since my last post, we have been having some problems with Chris' infusions....the Insurance was questioning if Chris really needed his infusions! Come on! He is suppose to get these infusions every 3 weeks (to live mind you), and it has been since the beginning of January since his last infusion; he is a bit weak and tired, but hanging in there. We went to the Neurologist last week, and the signs of CIDP are still there, and they are concerned that he has not had his infusion...YET! I have literally been on the phone all day fighting with Insurance, nurses, and financial aid. However, I seem to have finally gotten through to someone...and he should be getting his infusion next week (I hope and pray!) It also seems that we may have gotten financial aid for his infusions, thank heavens, these infusions cost up to $7000 a time...and we are responsible for 20% of that a time, can we say house payment?
Riley is doing wonderful, she continues to thrive in school. She is reading at like 2nd Grade level or so, and she is 6! Her vocabulary is getting so big...the other day I was reading a book to her and I said, "this is a strange book," and she said, "I think the book is delightful." What? I am so proud of her. She is doing crazy hard math...tonight we did some simple algebra story problems, yes, I had to read the instructions twice! Last week we had to do a problem such as this: 9 + x = , 10 + x = , and it went on like that for about 7 times; the answer being 12, but they had to figure out what x represents. Crazy. I love it though! She is learning geography and English (pronouns, nouns, etc.) Mrs. Wood her teacher is amazing and keeps them challenged and keeps them kids at the same time. Riley is also in the school play, "Jungle Book," she is an elephant, her and her little friend Sam were riding in my van the other day singing, "The Bare Necessities," too cute. I am excited to watch the show...video and camera in hand! Riley is enjoying gymnastics, and is strengthening her little body for spring sports, soccer and coach pitch baseball. I can't wait to see what kind of a woman this little girl becomes. The sky is the limit with her!
I am busy tending Mrs. Wood's little girl, and have enjoyed spending time with a baby again; I feel it is getting me ready to watch the Foster children that will soon come to our home. I guess, as I write this, I really don't have too much going on....but taking care of Chris, Riley. Boring eh? I love taking care of them though; I still am me though, I take time to educate myself and I read photography books all night (NERD!), but that is my escape. I do love my life, even with the trials, they really do make us who we are don't they?
Chris and I are doing good, we are dedicating ourselves to getting back to the temple, again. We miss it so much. Wish us luck. We will do it.
Well, that is about it, I hope I didn't bore you too much, but I thought I needed to update everyone on what is going on...I know people keep asking. We love you all and thank you that have offered to help and helped us out! You know who you are.
We are so blessed to have so many of you behind us. We hope you are all doing well...we love you!
Seriously, I hate the month of Feberuary. Camrynn was due Feb 29th and I was hoping to keep her in until March. But, she came early instead. She showed me!
ReplyDeleteSo how did things turn out with the insurance? Are they going to start paying for them again? I hope that Chris is doing ok without his infusions. We will be sure to have your family in our prayers.
I didn't know that you were getting foster kids! When is this going to happen? That is a really awesome thing to do.
It's been so long since we have hung out I feel like I hardly know you anymore lol!
Hope everything turns out for you guys! We'll have to plan something in a few weeks. Maybe we can try the Kangaroo Zoo again now that Camrynns older she'll have a lot more fun!
My admiraton for you grows each day. I am so grateful that you found me and that we are friends. You make me want to be better and stronger than I am.
ReplyDeleteThanks for letting us know how things are going.
ReplyDeleteI hope that Chris gets what he needs.
So glads your daughter is enjoy herself in school.
Isn't life crazy when you are a mom,wife, babysitter.
Keep up the good work!
Again can I say that you are amazing! I hope you are out of the February "funk" and feeling better. Please keep us posted on Chris and how he's doing, I hope things go well! Glad your baby girl is happy, it makes all the difference. I'm so happy to hear that you are getting back to the Temple, you will be blessed SO much. Hang in there ..... again AMAZING WOMAN!
ReplyDelete